I guess that these next articles are all about me. I have JO1 Antibodies which are a marker for people with Antisynthetase Syndrome. Because the illness is rare it is classed under the heading of Myositis. For the first few years of my illness this definitely made for some distinct confusion. Rare illnesses can be difficult to diagnose, understand, and treat.
Spontaneous Remission:
Remission is the dream word for those who suffer from illness, cancer, chronic disorder, or handicap. There are many who pray for this blessing to come their way. For me the word remission has a different meaning. Could I be a survivor of spontaneous remission from cancer?
The Day my Heart Stopped Beating:
Over the years I have had more than a few scares with this illness. The symptoms and flares come and go in a seemingly never ending parade of indifference to my valiant efforts to keep them at bay. But every now and then an old hurt flames to a dangerous level or a new symptom sneaks in and shocks the heck out of me That is what happened on this day.
Living with Myositis - Antisynthetase Syndrome - JO1 Antibodies:
My illness is classed within the category of rare diseases and because of this rarity I am listed under the main category heading of Myositis. When I first became ill there really was not much known about people like myself and now years later I still find that the overlap and individuality of this illness makes it confusing to understand and treat.
Remission is the dream word for those who suffer from illness, cancer, chronic disorder, or handicap. There are many who pray for this blessing to come their way. For me the word remission has a different meaning. Could I be a survivor of spontaneous remission from cancer?
Over the years I have had more than a few scares with this illness. The symptoms and flares come and go in a seemingly never ending parade of indifference to my valiant efforts to keep them at bay. But every now and then an old hurt flames to a dangerous level or a new symptom sneaks in and shocks the heck out of me That is what happened on this day.
My illness is classed within the category of rare diseases and because of this rarity I am listed under the main category heading of Myositis. When I first became ill there really was not much known about people like myself and now years later I still find that the overlap and individuality of this illness makes it confusing to understand and treat.